This is a special site for a special boy.
Please feel free to pray for him, ask about him, and connect with him through this blog!

Wednesday, February 25, 2009

HICCUP UPDATE!!

Ryan says to tell everyone, "Hello!" He is feeling well and has been for the last several days. His hiccups are intermittent, which sure beats the alternative. I must say that if hiccups make a child grow (old-wive's tale), then he will be big as a moose in just a few days. Hee hee.

My crew is certainly looking forward to Youth Camp in Tennessee next month. My prayers are that Ryan will be well enough to go. Even if he can't be at every service, he could at least stay there on the grounds so everyone can come by and kiss him. Pray that way, would you? He needs to be surrounded by all the love he can get.

Sometimes, our other children will come with members of our home congregation when my husband or I can't bring them. But, Ryan was able to be there last year and that meant I got to go too. I hope it goes that way this year as well. Often, we are unable to do things as a unit (you know, all 6 of us at once) because Brother's not able to be "up" for long periods of time. But there, I can take all his equipment and he can lie down whenever he needs to. He loves it, and the rest of us do too...

Church is busy! God is certainly doing a MIGHTY work in our home congregation. Many have given their hearts and lives to our Lord Jesus Christ. And I am soooooo thankful. There is nothing like the birth of a new creature in Christ and the joy it brings to the Mother. I am so blessed to be a part of such a wonderful family. I love each one.

If you are reading this, you are being exposed to the miraculous power of a wonderful, merciful God. The amazing things that he has wrought in the life of Ryan are enough to convince the greatest skeptic of the certainty of my Creator. I love him and I owe my everything to him.

Lord, thank you for allowing Ryan to have several good days. Forgive me when I don't understand. I know you have the best of plans for him. I guess sometimes I tend to forget that he has belonged to you all along. I can see your majesty in his eyes and your kindness in his smile.

Monday, February 16, 2009

Photogenic!!

I would like to apologize for taking so long in posting. A combination of computer glitches, scheduling, and mass hysteria all played a part in this delay. LOL!!

Ryan had about a week there when he was feeling very well. He had no hiccups, fever, sweats, etc. It was amazing. Unfortunately the relief was short lived. All of those crazy symptoms are here again. Yet, he smiles through it all. He's tough as a "pine-knot" as my Granny would say.

Last week, Ryan underwent some tests to rule-out possible causes for many of these symptoms. The main concern was that there may be a tumor in his adrenal gland: which would explain much of his situation as of late. Firstly, there had to be a urinalysis to detect specific components to indicate this tumor. Those were found in his urine and hence he was sent for a CAT scan. Thank God, his CAT scan came back normal.

His physicians believe that these symptoms are indicative of an overall neurological decline, not a condition or illness that requires medications or specific treatment. So, we are back to square #1, relieved that he is not facing some crazy surgery, but hopeless that there is nothing we can do but enjoy every moment with him.

Did you see his pictures? The day that he was scheduled for the scan, Sis.F was scheduled to come and do some pictures in our home with the family. I called her and told her that we could do it another day. NO WAY! She came, in spite of half of us being in pajamas, the house upside down, and all of us waiting on the doctor's office to call.

She was as cool as a cucumber and did a beautiful job getting some great pictures. (But, I have to admit that I have some good-lookin' kids)It is just like God to send a sweet spirit into the house (Sis. F) to take our minds off the test and back on happier tokens. Thanks Friend!!

Ryan was not shaken in the least. Drama does not affect him at all. You can see in his pictures that he was happy as a lark. His face shows me that his soul is not troubled over any of this world's worries: his physical condition included.

That's my little buddy... Ain't he cute??? When you think of his little face, you smile too.

Sunday, February 15, 2009

Comments

This is Ryan's Bloggy Friend again....had to make a few changes in the blog settings and wanted to let ya'll know....

Comments to this blog are greatly appreciated. Unfortunately some people can ruin a good thing and because of this, comment moderation has been turned ON for all older posts, as well as the word verification step, to make it harder for spammers to leave comments.

I apologize for the extra step this creates for the good people out there who are leaving thoughtful comments, please do not let this prevent you from commenting as it is a wonderful encouragement to Sis. S when you leave comment love for her and Ryan.

Thanks!!!

Sunday, February 1, 2009

At a Loss for Words...

"Prayer begins where human capacity ends."
Norman Vincent Peale

Often, when life happens; we are left unknowing what words will express how we feel.